Friday, February 26, 2010

First self inflicted shot

Riley slept most of today to the point where I got nervous, all afternoon. We have been postponing the red cell transfusion. We really want to wait until our last day to get the full benefit at home.

He finally woke and was refreshed. The nurse even unplugged him from his coat rack. We spent the late afternoon in the game room. I lost at a game of chess, but not until the last pieces for both of us. I made an alphabet necklace with Riley's name, and all his family including his Aunts and Uncle and cousins. We had a great time.

Riley decided on a bagel and cream cheese for dinner and ate it all . He asked for a second one.

After dinner the nurse came in with the evening blood booster shot. Riley cleaned his leg. I encouraged him to do his own shot. He took the needle and shoved it into his leg and injected himself. No fuss at all. He was so brave.

Tomorrow he will get platelets and red blood so he can be fresh and energetic at home.
His white cells are .3, red cells were 7.3, and platelets were at 20 after yesterdays transfusion.
It is his last treatment of ATG tomorrow. He will continue with the blood booster once a day and the cyclosporin twice a day for a year and the prednisone. We hold our breaths and wait. We wait a month minimum for a sign.

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