Tome would be here during my personal time. He will have his own time when he gets back. Right now I want this time, selfish as it is.
They come later to inject the poison into Riley. They are going to stop his bone marrow and reboot it theorectially. The doctors tell me Dornbeckers uses horse syrum over the other option of rabbit syrum. they could not tell me why one was better than the other, but there is a debate raging over the subject. I asked why not cow or pig. It got a chuckle. Though one doctor said she knew why they dont use pig. Then she didn't continue and the conversation moved on.
It has been a beautiful few days out the window. Riley asked me to snuggle in his faniy twin bed last night, while we talked. He asked why hospitals don't have baconies and I explained the air is purified. On his floor, the air coming in is cleaned. When my dad was in the hopital, the air was pressurized to prevent germs from escaping. There are lovely court yards through out the hospital, but Riley can't leave the ward.
Riley read the synopsis of the drug side effects last night nausia, vomiting, seisures. He asked if it was really necessary that he had to take it. Did he have a choice?He asked. I said not really. If he didn't take the drugs he would probably die. He is 14, I have always been open with my boys. When they ask why, I tell them. Besides he can tell from his father and my faces that this is serious stuff. Being kept in the dark would drive him to think he was dieing tomorrow.
He said something like that yesterday. He thinks the boy next door has a bigger room. He made the comment that He, Riley was the one that was dieing so why didn't he have the bigger room. I told him he wasn't dieing and to hush because there were very sick children around. The boy next door had just had a transplant himself. He has a tube down his nose to his stomach because he wasn't eating. He is a long termer. We are just starting our stay.
I had Riley order a big breakfast 3 eggs french toast and bacon. He loves the french toast. Every day this week has been french toast. I debated the big meal in case he gets sick later, but on hopital time it will probably all be digested before they start. Most of it is soft food anyway. Its just the bacon that might make it hard coming back up. I'll tell him to chew well.
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Steph-- not even totally sure you are reading these comments, but I hope so. Please be sure you are letting yourself vent at least once a day-- a good cry, sitting in your car screaming, whatever. Also excercise. Let someone spell you at least once a day for 30 minutes, and do some kind of exercise. Your body will handle the stress a lot better if you do. You have to take care of yourself as well as the rest of your family.
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