Saturday, April 3, 2010

Make a Wish

Make a Wish foundation sent out two girls to meet us. I say girls because they were probably just out of college, young things. They were adorable. They brought a gift for Riley and Trevor, two more models to make. The one for Riley was the Write Brothers' plane. Its going to be cool. The other was a fighter plane for Trevor. I have bought hooks to string a wire in Riley's room so he can hang them without too many holes in my ceiling and walls. I got the idea from elementary school classrooms when they hang art.

Riley's list started with a cruise with a balcony room or a Nascar race going to the pits or flying a plane himself or watching a rocket launch or just going to a resort. He tells the women the cruise he wants because the whole family could use the break and he wants a water slide and an arcade and to ski behind the boat like on myth busters, on the cruise. I pointed out with his picc he can't really do water activities. Tom is standing in the kitchen with his hand over his mouth preventing himself from commenting on the Nascar. He does contribute that any of the top 15 drives would be great to meet. The women know nothing about Nascar. They ask how often they race. I tell them out of 52 weeks in the year they race all but two months. They ask if there is a particular race track Riley likes after I explain that they race all over the country also, Charlotte, or California, Phoenix or Vegas. Tom suggests Homestead, its the last race of the year.

They ask if there is anything at this time that might interfere with dates medical appointments or school. I say no. I would pull Trevor from school for this I think. He didn't get to go to the Olympics recently because of bad grades, but with his brother sick, well, that's different. I do tell them not to make any decisions until end of May since if we choose bone Marrow all the time lines would change.

For Bone marrow we would take two months from start to finish then another 100 day wait to see if Riley rejects. I don't know if we would want to do this trip before or wait for after. Positive thoughts. The doctor is positive, but the liver surgeon for my dad was positive too, when my dad was obviously going to die of liver failure. Tom says you have to read the hints, read between the lines. That is why Tom is so depressed even though we haven't gotten there yet. he thinks we will get to bone marrow. Bone marrow is the cure, no chance of relapse and good blood forever more. That is not a bad thing to end up with, if you survive the process.

We had cocktails last night. I did not make it to my creative memories class. I did find that missing picture. I will scan it into my computer and print a copy for me. I can now finish the project I have been working on. Then I will start a book on Riley and Trevor. I need to start taking more pictures with the camera my girlfriend gave me.

1 comment:

  1. Happy Easter Steph! I hope you and the family had a great Sunday. The kids got backets. William's was perfect - filled with different size basketballs. LOL And Eleanor's has games, a tiny pool table that she wants to play with the cousins. We went to church and had a nice mid-day meal. We missed you! Love and hugs, Tory

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