summer

I found Tom reading my postings. He had tears in his eyes. We are both on the same page. I told him not to cry. Its a long time to wait. I no longer feel so guilty about the make a wish trip. This disease drags on and on. We just want it done and we have to wait. Its the system. As the doctor told us to give this process a chance because when we do the BMT Riley will not be in a good place. It will crush him physically and emotionally.

I remember the chemo for my Dad. He wouldn't do it twice. The chemo was worse than the cancer that killed him. What I hold on to is that it built up in his system. The first few treatments weren't bad. If we can get through that first week with mild side effects then the whole thing wont seem so long. The second week will be only a week. I don't even really know the details since we aren't supposed to be thinking this line yet. August is a long way off and its the end of August at that. But summer goes by so quickly when you are having fun and we are going to have fun this summer.

We have family coming to visit this summer. The boys have camp. We have a family trip. We have the beach. Football season starts in August. I have the teacher coming for part of the time. She agreed to work with the boys privately to keep them up and fresh. I know Riley enjoys her company. She challenges him and he respects her. We will keep busy.